BDRC Launches the National Birth Defect Registry Parent Forum

May 2017

Many families who have entered their children in the National Birth Defect Registry have asked to connect with other families. While we offer the option of our Parent Matching Program, we wanted to create an opportunity for families to connect more frequently with questions that only another parent of a child with a similar condition might be able to answer.

Birth Defect Research for Children cannot recommend physicians or medical procedures, but other parents can share their experiences.

Parents who are concerned about similar exposures in pregnancy may also reach out to each other through our new Parent Forum.

The Forum is also where BDRC will share registry reports and new study participation opportunities.

The Birth Defect Registry Parent Forum is a closed group. Members must have a child or children registered in the National Birth Defect Registry.

To join, go to https://www.facebook.com/groups/902514266551775/ and enter your name or the email address you used when you filled out the National Birth Defect Registry.

Newsletter Issue: 10 Volume: 9

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