National Birth Defect Registry

 

The National Birth Defect Registry is a data collection and research project sponsored by Birth Defect Research for Children. The registry collects information about birth defects, learning and attention disorders, autistic spectrum disorders, childhood cancers and other childhood disabilities.

According to the National Research Council, 3% of all birth defects and developmental disabilities are caused by environmental exposures and another 25% or more may be caused by an interaction between genes and the environment. To assess these associations, the registry asks about the mother and father's prenatal and pre-conceptual exposures to a variety of factors.

The questionnaire is in a secure section of our web site. After you complete and submit your questionnaire(s), our staff will download the information into the main registry at our offices and your information will be completely removed from the server.

To participate, please enter your email address in the designated box and type in a password. Then you will be able to create a unique profile for each child that may be accessed with this email address and password until your information is downloaded to the main registry.

If you would like to participate in BDRC's parent-matching project, click “yes” on the parent matching question. We will send you an email with the contact information for other families who have children with disabilities similar to those of your child.

If you have any questions about participating in the registry and parent-matching project, please call Birth Defect Research for Children at (407)895-0802, or email our staff.

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