Family Support Center

In our family support center, you will find links to birth defect support organizations and chat rooms as well as national information resources.

Click on the or next to the birth defect name to show or hide information on condition-specific support groups. If you would like to add a support group to one of our categories, please send us an e-mail.

General Birth Defect Links

Absence of Kidney(s) (Renal Agenesis)

Adams Oliver Syndrome

Agenesis of the Corpus Callosum

Allergies

Amniotic Band Syndrome

Anencephaly

Anopthalmia/Micropthalmia

Anorectal Malformations

Arthrogryposis

Asthma

Attention Disorders

Autism

Biliary Atresia

Bladder Exstrophy

Cerebral Palsy

CHARGE Syndrome

Chiari Malformation

Cleft Lip and Palate

Cloacal Exstrophy

Clubfoot

Coloboma

Congenital Cataracts

Congenital Diaphragmatic Hernia

Cortical Blindness

Craniosynostosis

Cystic Hygroma

Dandy Walker Malformation

Diabetes

DiGeorge Syndrome

Down Syndrome

Ear Defects - Microtia/Anotia

Encephalocele

Fetal Alcohol Syndrome

Gastroschisis

Goldenhar Syndrome (hemifacial microsomia)

Growth Disorders

Hearing Loss

Heart Defects

Hemangiomas

Hemihypertrophy

Hip Dysplasia

Holoprosencephaly

Hydrocephalus

Hypoplastic Left Heart Syndrome

Hypospadias

Immune Deficiency

Learning Disabilities

Limb Reduction Defects

Microcephaly

Moebius Syndrome

Neural Tube Defect

Neurogenic Bladder

Obsessive Compulsive Disorder

Omphalocele

Pectus Excavatum

Pierre Robin Syndrome

Potters Syndrome (Renal Agenesis)

Poland's Syndrome

Polycystic Kidney Disease

Porencephaly

Pervasive Developmental Delay

Premature Births

Pyloric Stenosis

Renal Agenesis

Scoliosis

Sensory Integration Dysfunction

Skin Disorders

Spina Bifida

Syndactyly/Polydactyly

Tethered Cord Syndrome

Thrombocytopenia Absent Radius (TAR)

Tourette Syndrome

Tracheoesophageal Fistula

Trisomy 18

Turners Syndrome

Undescended Testicles

VATER Association